Wednesday, July 8, 2015

Yes I have found the cause of my insomnia…..hopefully

I recently received a comment from 'CiM' about the hell of insomnia, and my heart went out to this person. CiM asked if I had found anything to help insomnia long-term, since I hadn't blogged in over a year. Of the things I blogged about in the past, none had any lasting helpful benefits when it came to my insomnia. I wish I hadn't been so glowing, for example, about "earthing" or thyroid medication - but maybe those things will help someone else.

But now I can answer "yes," I believe I have found the cause of my insomnia. (And CiM actually mentions it in his/her comment!) Here's my story:

More than a year after my insomnia started on a regular basis, I moved into a new house. After a few months, I started experiencing various other health symptoms. I went to a long list of doctors (allergist, internist, rheumatologist, gynecologist, psychiatrist, acupuncturist, herbalist, sleep specialist, etc), with no answers. Finally after about a year or so, I went to an ear/nose/throat specialist, because one of my symptoms was an earache. He said to me "well, the tests done by all the other doctors have ruled out anything that might be causing these symptoms; do you by any chance have mold in your house? That's the only other thing I can think of." 

I assured him that I had never seen any mold in my house. However, I called a mold inspector and had air tests done, and sure enough they came back positive for mold in the air, including the black mold that is most renowned for causing health problems. It turns out that the basement in my new house had mold behind all the paneling. Long story short, I had the basement demolished and waterproofed.

The first night after the basement was demolished, I felt better, with a slight improvement in my sleep. However, I still had sleep problems.  I kept pursuing the various insomnia "cures" I blogged about in previous posts.

But one day I got to thinking: if an environmental irritant like mold had given me various aches and pains, could it be that I am sensitive to other environmental factors as well? I thought a lot about my symptoms and how they corresponded to certain times of my life. The first thing I tried was keeping my dog out of my bedroom. I also purchased an air purifier with a HEPA filter and ran it in my bedroom every night, all night. 

My sleep improved significantly. 

I then began taking further action to minimize dog dander inside the house by brushing my dog every day outside and washing him once per week. I also boarded my dog for a few weeks to see if that made any difference. 

I am now convinced that my immune system is sensitive to dog dander and that this was the only or primary cause of my insomnia. (Even though I tested negative to the skin prick test for dog dander done by the allergist.) 

I read a lot about different types of allergies (IgG, IgE) and the immune system (cytokines), and have to admit I didn't really understand it. But I understand this: some people are more sensitive to environmental factors than others, environmental factors can cause inflammation, inflammation can occur in the brain, and inflammation in the brain can lead to neuro/psych symptoms. (I call them neuro/psych because I honestly don't understand why we label some people with brain disorders as psych patients, and others as neuro patients -- it seems like a ridiculous and very unfair distinction to me).

The last connection I made  to my insomnia was with my menstrual cycle. My insomnia occurred all the time, but got worse in the days before my period. I began taking supplements that are supposed to help minimize hormonal swings. At first a supplement called DIM was helpful, but it stopped working. Now I am taking an herb called Shatavari which is helpful. It seems to me that hormones, like any other chemical or irritant, may also cause inflammation in the brain in some people.

Back to CiM, who wrote: "My insomnia began very abruptly with a toxic chemical exposure." Coincidence?

I strongly believe that environmental sensitivity was the key to my insomnia. The amazing thing is that I now sleep through the night almost every night. I can't say it is the most restful sleep I've ever had, but maybe that will happen after my current dog passes on. I haven't lived in a dog-free home in 17 years. While I didn't have insomnia the entire time, I did have other symptoms that may be related, and I may have just gotten more sensitive over time.

My dog, of course, is bummed that he can't sleep in my bed anymore, but he's gotten used to the fact that he has to sleep in another room.

To CiM, since you know you are sensitive to some chemicals, I would encourage you to think creatively about what else might be in your home that could be causing an immune reaction, such as a pet or mold. Maybe that could be contributing to your insomnia also.


To anyone who is interested in more information on the scientific aspects of immune system, inflammation, and neuro/psych symptoms, I've found some relevant articles from credible sources that are peer-reviewed. I've posted links to them below (note that they may focus on "mental illness," but I don't see why a similar immune system reaction couldn't cause insomnia rather than depression):

Is depression a kind of allergic reaction?

From inflammation to sickness and depression: when the immune system subjugates the brain

Mind and body: Scientists identify immune system link to mental illness

Mental Health: Molding a Link to Depression


I wanted to add that there are still some times when, due to nerves or something else, I wake up in the middle of the night. I used to meditate at these times, and now I've started a form of meditation I learned from HeartMath, which they call the quick coherence techniqueI find it helpful.

I hope this blog post is helpful to others, including CiM. I know not everyone has environmental sensitivities (I read somewhere that about 25% of people are sensitive to mold), but perhaps this will help some people who have insomnia.

And I'll blog again in the future if I continue to learn more.  I think I still need to blog on my sleep study. Please feel free to post your stories here also and let me know if any of this information is helpful to you.





6 comments:

  1. Yesterday I tried to leave a comment, but it disappeared into Google oblivion. No idea why this sometimes happens.

    Not much free time to comment as you deserve at the moment - but I wanted to THANK YOU for taking the time to write this update! Your words give me hope, which may be what I need even more than sleep.

    You might think it doesn't make a difference to type and publish on a screen - but it does. You've helped me keep going, keep looking, keep believing that somewhere out there is an answer. Reading the words of someone who understands...that's a lifeline for me, too. Thank you!

    ReplyDelete
  2. Forgot to check the "notify" box - doing that now. :)

    ReplyDelete
  3. Dear CiM: you are most welcome. Yes, there is definitely an answer out there-- we have to keep trying to find it! The treatments only attempt to alleviate symptoms, but the ideal of course is to identify the cause. I forgot to mention that, in addition to sleeping with an air purifier, I take a shower every night right before bed. This was recommended to me by the ENT doctor and I believe it really does help if someone has an issue with environmental allergies.

    ReplyDelete
  4. More questions - so I looked for an email on your profile but didn't see one. If you'd rather I email directly, you can let me know.

    However, seeing how helpful it has been - at least for me - to read the "conversations" of others by way of comments, I'm glad to discuss here as long as you don't mind. :)

    You mentioned trying earthing/grounding along the way. Do you have a specific post (or posts) where you talked about your personal experience with that treatment? I've been hearing a lot about grounding and there seem to be dissenting opinions all over the internet. I guess that's pretty much EVERY topic...

    Did you try a grounding mat? Or a sheet? Or something used at your computer? If you've already covered this in a post, will you direct me to the right one?

    I tried grounding/earthing on a simple scale - just walking around barefoot outside - and it didn't hurt anything. That was nice. But it also didn't help my insomnia at all.

    The other question I wondered about - have you tried/encountered Annie Hopper's Dynamic Neural Retraining System? Or the similar Gupta program? If you have, I would love to hear your thoughts or experiences. Most patients who find success with those programs have symptoms quite different from mine, but I have pondered if anything there might help.

    In case you're wondering why I'm asking you - I've found your blog articulate, clear, interesting, informative, and worth reading in every way. It doesn't hurt to ask, and if you'd be willing to write more, I know I wouldn't be the only one helped by your words.

    As with last time, I don't need a personal reply. If you feel like answering any of this, it is fine to do a post instead of a comment if that works better.

    Thank you for writing and for understanding the search for answers. It means so much!

    ReplyDelete
    Replies
    1. Hi CiM: I don't mind discussing this in the comment section at all. This is the blog post that discusses earthing:
      http://myfisherwallacestory.blogspot.com/2013/06/i-found-something-that-has-actually.html

      The wrist/ankle bands are inexpensive and can be used both at your desk and while in bed, so I found them to be a very inexpensive way to try out the earthing concept.

      I honestly don't remember it helping me that much, but clearly at the time I thought it did. I guess it just didn't last very long, or it was a psychosomatic response, or a quick benefit but not enough to overcome the allergy.

      I am not familiar with Annie Hopper's Dynamic Neural Retraining System or the Gupta program. I just looked at her website and saw this: "The program integrates components of cognitive-behaviour therapy, mindfulness based cognitive restructuring, emotional restructuring therapy, neural linguistic programming and incremental exposure and behaviour modification therapy." These sound like things that maybe you have already done or could try in ways that are less expensive if finances are an issue. But maybe there is some added value of which I am not aware.

      Thanks for your kind words about my blog! I still have some other blog posts I would like to write up--you've inspired me to write more.

      Delete
  5. I ordered the device, and received a defective unit-now I have to pay the shipping to ship it back! Terrible customer service-if they ship a DEFECTIVE unit, should be responsible for any shipping. Device was only available directly from FW. I paid with Charge card, but returns are paid by Check, 4-6 WEEKS after they receive it! Also, Med Code they give to you is for REGULAR Tens unit-one you can buy for $40-$50 so MAX my BC/BS PPO plan can pay is $55 for a $700+ unit! I cannot afford to pay $650 for a unit that frankly looks like any other tens unit (just has a head band for electrodes).
    I will not take a chance of having them 'repair' this new unit then have to pay return postage again if it is not fixed-what kind of company does not stand behind their NEW units?
    TERRIBLE customer support & service. Cannot buy from this company on that basis. They don't seem to care!

    ReplyDelete